Autism - länktips, behandlingsmetoder osv 7

Tänk om vi kunde ha den här konferensen i Sverige....
www.behandlaautism.nu gör sitt bästa, men tänk så mycket intressant det finns:

NEW VOICES AT THE CONFERENCE - ARI LEADS THE WAY WITH TOP RESEARCHERS, PRACTITIONERS AND EDUCATORS JOIN US APRIL 26-29 IN NEWARK

It's a critical time in autism research and 2012 promises to bring new findings and the potential for new evidence-based treatments at a rapid pace.  

At this spring's conference we'll be featuring innovators from the scientific, behavioral, educational, nutritional and medical communities.  Along with many familiar faces, we are pleased to highlight these exciting new voices:
 

Lindsey Biel, OTR/L
Sensory Smart Strategies for Real-life Challenges
Lindsey Biel is an occupational therapist with a private practice in NYC, where she evaluates and treats children and adolescents with autism spectrum disorders and other developmental challenges. She is coauthor of the award-winning Raising a Sensory Smart Child: The Definitive Handbook for Helping Your Child with Sensory Processing Issues, with a foreword by Temple Grandin. She is also coauthor of the Sensory Processing Master Class DVD program.
 

Robyn Catagnus, EdD, BCBA-D
Practical, Everyday Tips for Parents of Children with Autism
Dr. Robyn Catagnus serves as Vice President, Professional Services of Rethink Autism.  As former owner of a special education agency, she supervised cases, developed training programs, and conducted workshops and training events. Her research interests include class-wide interventions, action research, online professional development, and e-collaboration for teams. Dr. Catagnus has a Doctor of Education in Special Education from Arcadia University, a Master of Science in Education in Curriculum, Instruction, & Technology in Education, Temple University, and is a Board Certified Behavior Analyst.
 
 

Scott Faber, MD
Environmental Toxins and Autism
Dr. Scott Faber is a Developmental Pediatrician, board certified in Neurodevelopmental Disabilities, Developmental-Behavioral Pediatrics, and General Pediatrics. He is a clinician and researcher at the Neurodevelopmental Disabilities Service of The Children's Institute in Pittsburgh, Pa. He is a graduate of the University of Pittsburgh School of Medicine, completed pediatric residency at Boston Floating and North Shore Children's Hospitals, and finished his Developmental -Behavioral and Neurodevelopmental Disabilities fellowship at Rainbow Babies and Children's Hospital of Case Western Reserve University. His research and clinical interests center on the underlying detoxification and immunological features of autism, international adoption, and the use of nutritional support and biofeedback for children with neurodevelopmental disorders.
 
Behavioral Support for the Treatment of Autism
Ivy Feldman, Ph.D, BCBA-D (photo not available) has been educational director of the McCarton School since 2002. As such, Dr. Feldman is responsible for the curriculum, behavioral planning, and setting of the educational policies at the McCarton School. She also provides ongoing staff training and coordinating educational planning with parents and outside therapists. Dr. Feldman is licensed psychologist specializing in child psychology and a Board Certified Behavior Analyst. Dr. Feldman received her M.A. in psychology from New York University and a Ph.D. in clinical psychology from St. John's University, Queens, New York. She has worked as a special education teacher at League School in Brooklyn and provided Applied Behavioral Analysis (ABA) therapy, supervision, and consultation. In addition to her work with special-needs children, Dr. Feldman has done research with high-risk infants.
 
 

Carmen N. Arroyo-Otero, MD, FAAP
Hablemos de Autism
Dr. Carmen N. Arroyo-Otero received her MD degree from the University of Puerto Rico School of Medicine and is board-certified in Pediatrics.

She has been taking care of children with autism since 2004 in Austin, TX. She is the executive director/founder of Puzzles of Hope, Inc.; a non-profit organization that works to help children on the autism spectrum.

 

Andrea M. Lee Roundfield, MS, MSEd, EdD (ABD)
Building Partnerships with the Medical Community in IEP/Transition Planning for Individuals with Autism and Other Disabilities
Andrea Lee Roundfield, MS, MA, LSCI &TCI certification, is a Special Education instructor and IEP and Related Services coordinator in New York City's District 75, the only school district of its kind. She has also taught in Mercy College's Graduate Teaching Fellows Program. Ms. Lee Roundfield has led inquiry studies and action research in teaching students with varying disabilities. She is pursuing her Doctor of Education in Education Leadership at Walden University.
 
 

Maya Shetreat-Klein, MD
Neurological Assessment and Seizure Management in Children with ASD,
The Use of Botanical Agents in Treating ASD Symptoms &
Comprehensive Case Management
Dr. Shetreat-Klein is an integrative pediatric neurologist board-certified in neurology and pediatrics. She graduated from AECOM with a Special Distinction in Research for her work in autism. Following conventional neurology training, she completed University of Arizona's Program for Integrative Medicine and now teaches integrative neurology there as faculty.  An Assistant Clinical Professor of Neurology at Albert Einstein College of Medicine, Dr. Shetreat-Klein lectures widely on botanicals and children's nutritional and environmental health. She is director and founder of Brainmending, an integrative center in NYC for people who have complex neurological and chronic pediatric disorders.
 
A Full Life with Autism: A Mother-Son Journey through Transition to Adulthood
 

Chantal and Jeremy Sicile-Kira
Chantal and Jeremy Sicile-Kira are autism advocates and co-authors of A Full Life with Autism: From Learning to Forming Relationships to Achieving Independence (Macmillan, 2012). Jeremy graduated from high school with a full academic diploma at age 22 despite being diagnosed as mentally retarded and severely autistic. He attends community college and writes for the school newspaper. Chantal is known for her practical advice on adolescence and transition, has written four other books, and founded AutismCollege.com for online information.
 
Carbohydrates and the Microbiota in
 

Brent Williams, PhD
Children with Autism and Gastrointestinal Disturbances
Dr. Brent Williams is a faculty member at the Center for Infection and Immunity at Columbia University. Dr. Williams received his PhD in Microbiology and Molecular Genetics from the University of California, Irvine. His recent research has focused on characterization of the molecular and microbial signatures associated with gastrointestinal disturbances in children with autism.  His research on GI disturbances in autism resulted in the publication of the PLoS One article entitled: "Impaired Carbohydrate Digestion and Transport and Mucosal Dysbiosis in the Intestines of Children with Autism and Gastrointestinal Disturbances," as well as the article in the ASM journal, mBio, entitled: "Sutterella Species in Intestinal Biopsies from Children with Autism and Gastrointestinal Disturbances: Application of Novel PCR-based Methods for Detection, Quantitation, and Phylogenetic Characterization of Sutterella Species."

Lördagen den 11 februari välkomnar BAN! sina medlemmar till en träff där vi pratar om matlagning och bakning utan gluten, mjölk och soja. Läs mer på www.behandlaautism.nu

Floortimekurserna brukar vara så att de vuxna träffas, går igenom lite teori, går igenom var barnet befinner sig osv, sen filmar föräldrarna hemma och skickar filmerna innan nästa tillfälle. Man tittar sen på varandras filmer (det lär man sig mycket av), får feedback, kanske uppgifter, förslag osv. I väldigt korta drag.... men fråga på www.speciella.com för bättre svar!

det här med "sensory integration" är ett väldigt eftersatt område i Sverige tycker jag. Här stötte jag på en text som kanske kan ge lite ideer:

Parenting a child with sensory processing disorder (SPD) can be overwhelming.  Being unable to process sounds, touch, sights, tastes, or smells will make every day activities a challenge.   A child with SPD may over-respond to their environment and find clothing, sound, light, food, physical contact, or other sensory input to be overwhelming and unbearable.  Other children will under-respond, unable to appropriately respond to heat, for example. Some children struggle with just one “sense” while others have problems processing multiple senses at a time.  Children with autism are also prone to sound sensitivity.
 
Treatment for SSPD is generally done with an occupational therapist in a play-based treatment in a room specifically designed to be sensory-rich.  The therapy is designed to challenge the child into processing new things while children complete normal therapeutic activities.
 
Technology is making SPD therapy easier and more accessible.  Since the 1990’s Electronic Auditory Stimulation effect (EASe) products have been used to stimulate and challenge a child’s sensory processing through short, intense visual and auditory experiences.  Now with the use of iPhones and iPads, parents and therapists will have easy access to the EASe tools for therapy by simply downloading the EASe application.
 
The EASe Listening Therapy app is available in three versions – EASe Lite, EASe Personal, and EASe Pro
 
EASe Lite ($.99) is a demo with one song and full functionality except for audio import. itunes.apple.com/us/app/electronic-auditory-stimulation/id472604387&mt=8
 
EASe Personal ($39.99) includes the full EASe app and a 60-minute module of instrumental music, enough to complete a ten-hour EASe Listening Therapy program. itunes.apple.com/us/app/electronic-auditory-stimulation/id472591104&mt=8
 
EASe Pro ($99.00) includes the full EASe app and a 60-minute module of instrumental music, and also is capable of importing specially prepared EASe Music Modules. itunes.apple.com/us/app/electronic-auditory-stimulation/id461769387&mt=8

fler studier som visar att det faktiskt är hyfsat vanligt att barn med autism senare är utan autismproblematik. En av många artiklar om denna studie:

"The lead researcher, Dr Andrew Zimmerman, from Massachusetts General Hospital for Children, accepts the findings might partly reflect the fact that some of the children may have been misdiagnosed. But he stresses that these are only a minority, and his results should certainly not be put down to misdiagnosis alone.

“It is not unusual to see a child start out with more severe autism and then become more moderate and even mild as the years go by,” he says. “A lot of the kids are improving. We don’t know why, except that there’s a lot of mould-ability of the developing brain.”

Dr Zimmerman’s conclusion is backed by previous studies which have suggested that between three percent to 25 percent of autistic children “recover”."

Hela artikeln: www.iol.co.za/lifestyle/family/kids/can-some-children-grow-out-of-autism-1.1250021

Och det här med motorik och musik kom in i just det här fallet( samma artikel)

London - When Josh Tutin was three years old, he was diagnosed with autism so severe that experts believed it unlikely he would ever relate to other people.

Yet now the Bristol boy is a thoughtful, joyful nine-year-old who attends a mainstream school.

“Some people say he has grown out of it,” says Renitha. “But they have no idea of the hard work that has been involved.”

Instead, she believes the improvements are a result of her intense efforts to teach Josh to cope with his condition.

She read in a magazine that, in some people with autism, the left and right hemispheres of their brain appear to not ‘connect’ as effectively as people without the condition.

Renitha also read that playing a musical instrument is one of the few activities that activate the left and right hemispheres at the same time. So Renitha decided to teach Josh the piano when he was only four.

“To begin with, it was a battle even to get him to sit on the stool,” she says. “But I believe that is one of the things that has helped him develop his brain and to understand the world.”

Josh also had a lot of problems with his co-ordination and so Renitha spent hours crawling and climbing with him.

“Josh’s co-ordination has improved enough for him to start tae kwon-do lessons - although this was not easy,” says Renitha. “He has a very supportive instructor and Josh is now determined to get his black belt one day.

“I never knew if any of the strategies I used would work. But they were all worth a try. The alternative - Josh being locked in his little world for ever - was far more scary and depressing.”

intressant:

www.sydsvenskan.se/sverige/skane-vill-se-om-alternativen-fungerar/

Neurofeedback, rytmisk rörelseterapi och akupunktur för adhd (kanske även för autism? Någon som vet? Även om jag är övertygad om att det bör behandlas ungefär lika vad det gäller de här bitarna) tittas det närmare på

Lite extra intressant i artikeln tycker jag: Gillberg ska titta närmare på Neurofeedback om jag fattar det rätt. Kostförändringar verkar anses som det mest vetenskapligt stödda sättet att behandla adhd - även om de inte  skriver ut exakt vad som tagits bort i The Lancet studien, men visst var mjölk & gluten bland det som bort? 

Också kanske intressant med tips på terapeuter om man bor i Skåne.

Neurofeedback vet jag att Dr Neubrander listade bland sina top3 behandlingar vid autism. Är själv också nyfiken på Tomatis. Men det här med att göra allt blir lätt till ingenting....

det här med att det skulle finnas en "magisk ålders gräns" när det liksom är försent. Inte om man ska tro den fina historien om utvecklingen hos en 28-åring jag precis la på forumet på www.behandlaautism.nu/forum och många andra berättelser. Keep the faith people!

Mycket intressant verkar det som: öppet för alla tror jag. Konferens på Karolinska: 

THE GUT AND THE BRAIN With focus on Autism Spectrum Disorder (ASD)

NOBEL FORUM, KAROLINSKA INST ITUTE, May 7th 2012
THE GUT AND THE BRAIN
With focus on Autism Spectrum Disorder (ASD)

PROGRAMME
Welcome and Introduction
Pictures from a Canadian Documentary
HB Walker: A true case story
The Brain
K Hugdahl/L Ersland: Functional and structural NMR –possibilities and challenges
The GUT
T Midtvedt: The Gut – a triggering place for ASD – possibilities and challenges
The Connection
J Bienenstock: Nervus vagus – a highway from gut to brain
Problems, possibilities, challenges – and solutions?
J Nicholson: Urinary metabolic profiles in ASD (NC = not confirmed))
D Macfabe: ASD and the mitochondria
A Clayton: Gut metabolism of some amino acids – a possible connection to ASD (NC)
KL Reichelt : Dietary derived, bioactive peptides in urine from ASD children

R Heijtz (Title not established)
S Boelte (NC - title not establhed
I Mysterud: Vaccination – a never ending concern (NC)
Round Table Discussion
Chairmen H Forssberg,T Midtvedt
Panel: All lecturers + O.A Christophersen
Concluding Remarks

Nya, officiella siffror från USA där förekomsten av autism ökat med 78 % sen 2007. Läs mer här: www.cdc.gov/