• kaffemamma

    Autism - länktips, behandlingsmetoder osv 7

     


    Vi fortsätter diskussionerna här!

    För dig som är ny rekommenderar jag alla bra länkar och tips på de tidigare trådarna med samma namn. Denna tråden är tänkt främst för att samla länktips och prata om olika behandlingsalternativ. För mer allmäna inlägg om våra barn med autism rekommenderar jag Autismtråden.

    Här är alla välkomna att berätta om sina erfarenheter och fråga om andras, ge lästips osv. B6, omega 3, IBT, kommunikativ ridning, DAN-läkare, HBOT, dieter, Son-Rise-programmet, pratdatorer, sensmotorisk träning - det är en djungel och personligen vill jag gärna ha så mycket information som möjligt för att se vad som passar oss. Alla inlägg är välkomna, och som vanligt är de flesta av oss inte experter utan var och en måste göra sin egen bedömning av vad som är värt att undersöka vidare.

    Den som är intresserad av att komma i kontakt med DAN-läkare, eller vill veta mer om biomedicinsk behandling kan ta kontakt med BAN! (behandla autism nu) www.behandlaautism.nu.

    Välkomna gamla som nya!
    TRÅDSTARTARENS TILLÄGGSKOMMENTAR 2010-05-25 10:28
    tråd för gf / cf recept:
    www.familjeliv.se/Forum-5-72/m52572166.html
  • Svar på tråden Autism - länktips, behandlingsmetoder osv 7
  • Klättermusen

    Jag har inte läst undersökningen om IBT som framkommit men jag måste säga att jag inte tycker det är vettigt att göra undersökningar på allt detta med IBT eftersom jag tycker det brister på så många håll i hur programmet ska utföras och om det verkligen utförs överhuvudtaget. I USA kör de ju först hemträning innan barnet ska ut ( så som finafamiljen försöker få till det med deras son, alltså att barnet ska slussas ut i en verksahet för att det hela ska lyckas) och så är ju programmet inte upplagt här i Sverige. De handledare vi haft är också själva ganska osäkra på hur tid ska räknas och vi har tex haft resurser som skrivit upp träningstid för att vår son lyssnat på musik. Jag tycker inte det är helt rätt att man gör undersökningar när det är så mycket som är luddigt eller inte funkar speciellt bra.

  • FinaFamiljen
    Klättermusen skrev 2011-11-08 11:14:50 följande:

    Jag har inte läst undersökningen om IBT som framkommit men jag måste säga att jag inte tycker det är vettigt att göra undersökningar på allt detta med IBT eftersom jag tycker det brister på så många håll i hur programmet ska utföras och om det verkligen utförs överhuvudtaget. I USA kör de ju först hemträning innan barnet ska ut ( så som finafamiljen försöker få till det med deras son, alltså att barnet ska slussas ut i en verksahet för att det hela ska lyckas) och så är ju programmet inte upplagt här i Sverige. De handledare vi haft är också själva ganska osäkra på hur tid ska räknas och vi har tex haft resurser som skrivit upp träningstid för att vår son lyssnat på musik. Jag tycker inte det är helt rätt att man gör undersökningar när det är så mycket som är luddigt eller inte funkar speciellt bra.


    Väldigt relevanta tankar..!
  • sirisdotter
    Mamasnest skrev 2011-12-07 08:14:58 följande:
    Jag håller på att läsa "Det räcker inte med kärlek" och skulle vilja på tips om liknande böcker.
    "Min vän Henry"  av Nuala Gardner   - antar att jag fick tips om den  på FL,   liksom om Lexheds bok.   Utspelar sig i Glasgow,   så en del företeelser  (möjlighet att få  förskoleplats,    undersökningar)   skiljer sig nog från  svenska förhållanden.   En underbar bok,   som också filmats;    "After Thomas".

    "Vad händer med Kalle:  en pappa berättar" -  av Fredrik Hjelm  rör sig i svenskt   vardagsliv.
  • kaffemamma

    Jag tycker att Birgitta Rubins bok "Barnet i glaskulan" där hon följt ett antal familjer som valt olika typer av behandlingar för sina barn är bra och nyttig. Dock är en del av historierna sorgliga, men då handlar det ofta om de som idag är äldre, som fått fel bemötande (som jag minns det, det var ett par år sedan jag läste den)

    Iris Johansson bok "Annorlunda barndom" är ju också väldigt annorlunda, ett inifrån perspektiv från en person med autism, även om jag inte tror att hon är särskilt typisk ( på en del sätt, men på andra inte - förstås)

  • kaffemamma

    lite tankar inför jul från Son- Rise-folket:


    Stopping Your Child From Isming ("Stimming")
    Given the commotion and routine-change of the holidays, this is the most important time for our children to be allowed to self-regulate and cope with their environment. We know that isming is crucially important to our children and their nervous systems. Ideally, of course, we would join our children in their isms. But even during the times over the holidays when we aren't able to do this, we can still let our children do their thing. When we do this, everybody wins! Feeding Your Child "Crash & Burn" Foods
    Yes, it's the holidays. Sugary, wheat-filled, dairy-crazy foods abound. It can be tempting to allow our children to partake in this glorious cornucopia. We might think it will be easier to just let them have it this once. Let me assure you: it will not be easier! There are a host of foods that we know are not going to be processed well by our children. Yes, the first few minutes of allowing them to eat whatever is around might seem easier. But a few minutes later…it's crash & burn time. The melt-downs, overeating, challenging behavior, and diarrhea that will result are truly not worth it. Taking the forethought to either keep these foods away from our children or - better yet - not have them around at all will make the whole holiday experience a million times easier. Surprising Your Child
    Sometimes, we can be so busy planning and getting ready for a holiday outing (e.g. going to grandma's) or project (e.g. putting up the Christmas tree) that we forget to notify a crucial participant: our special child. Although our intention is not to surprise our children, this is often what happens when we depart on an outing or embark on a project without explaining everything that will happen to our children in advance. Even for our non-verbal children, explaining ahead of time what will happen and why it will be fun for them will go a long way toward minimizing tantrums and maximizing cooperation. Leaving No Way Out
    It is very common to go to someone else's house for a holiday celebration. Usually, we just take our child and hope for the best, thinking that we don't have a lot of control over the matter. But we do! We can designate, in advance, a calm room or space where our child can go to decompress once they begin to be overwhelmed by all of the commotion and sensory input that comprise most celebrations. Every so often, it can really help to take our child to this room and spend some time alone with him or her. Focusing On Stopping Challenging Behaviors
    Most of us dread our children behaving in a challenging way. We worry about it, we look for it, and we try to stop it as soon as it happens. Ironically, this puts all the focus on what we DON'T want from our children. If we don't want our children to hit, for instance, focusing on "not hitting" can actually create more hitting. Instead, we can celebrate our children every time they do something we do want. If we have a child who sometimes hits, it can make a huge difference to actively look for any time our child is at all gentle - and then cheer wildly! Giving An Over-Stimulating Present
    Sure, we derive great joy from the experience of giving presents for our children. But when it comes to our special children, we want to be especially cognizant of what type of present we give. If we give a present with flashing lights and loud beeps, we're asking for challenging behavior later. Let's take some time to sincerely consider whether the gift we are about to give is going to contribute to the over-stimulation of our children with sensitive sensory systems. Leaving Our Children Out Of The Giving Process
    We always consider our special child when purchasing gifts. But do we think of our special child as a potential giver of gifts? Thinking of other people - what they want, what we could do for them - is an essential element of the socialization that we want our children to learn. The holidays provide the perfect opportunity for this! We can schedule sessions with our special child in advance where we help them create something for one or more of the people in his or her life. (These gifts and activities can range from very simple to more complex, depending on our particular child's level of development.) Then, on the day of gift-giving, we can invite our special child to present (as best he or she can) any gifts that he or she has made. Expecting Your Family To "Get It"
    Many of us may, at times, feel frustrated with members of our extended family for not being more understanding and responsive when it comes to our special child. But, remember, if our extended family members don't live with our child, they won't "get it." When taking our special children on visits to extended family for holiday visits, we can send e-mails to them explaining what they can do to make the visit comfortable for us and our child. We can take this opportunity to explain why sudden loud noises might be problematic, or tell everyone the answer our child likes to hear when he or she asks the same question over and over. This way, we stack the deck in our child's favor. Thinking That Activities Need To Happen Outside Your Home
    We know that children on the Autism Spectrum will always do better when they are not over-stimulated by the many sights, sounds, smells, and unpredictable events of the outside world. So, we can create experiences in our homes that we would normally go out for. For instance, instead of going to an evening parade with a festival of lights, we can put Christmas or Hanukkah lights around the house, turn off all the lights, and play holiday music at a gentle volume. Some of us might be concerned about depriving our children of fun holiday experiences, but keep in mind that when our children can't digest the experience, they're not having the fun experience we want for them, anyway. That's why, if we can create a digestible version of the outing at home, our children can really take in and enjoy the experience. Thus, we are actually giving our children more, not less. Seeing the Wrapping Instead of the Gift
    So often, we get caught up in the trappings of the holidays - the tree, the presents, the outings that have to go exactly as planned. It's okay to arrange fun things, but remember that these are only trimmings. They aren't the gift, they're just the wrapping. The gift is our special child. The gift is sharing sweetness with the people we love. Instead of using the holidays as a planning fest, we can use it to see the beauty in our child's uniqueness, to celebrate what our child can do, and to feel and encourage compassion for our child's very different way of experiencing the world.
  • mammaannika
    kaffemamma skrev 2011-12-07 10:49:29 följande:
    lite tankar inför jul från Son- Rise-folket:

    Stopping Your Child From Isming ("Stimming")
    Given the commotion and routine-change of the holidays, this is the most important time for our children to be allowed to self-regulate and cope with their environment. We know that isming is crucially important to our children and their nervous systems. Ideally, of course, we would join our children in their isms. But even during the times over the holidays when we aren't able to do this, we can still let our children do their thing. When we do this, everybody wins! Feeding Your Child "Crash & Burn" Foods
    Yes, it's the holidays. Sugary, wheat-filled, dairy-crazy foods abound. It can be tempting to allow our children to partake in this glorious cornucopia. We might think it will be easier to just let them have it this once. Let me assure you: it will not be easier! There are a host of foods that we know are not going to be processed well by our children. Yes, the first few minutes of allowing them to eat whatever is around might seem easier. But a few minutes later…it's crash & burn time. The melt-downs, overeating, challenging behavior, and diarrhea that will result are truly not worth it. Taking the forethought to either keep these foods away from our children or - better yet - not have them around at all will make the whole holiday experience a million times easier. Surprising Your Child
    Sometimes, we can be so busy planning and getting ready for a holiday outing (e.g. going to grandma's) or project (e.g. putting up the Christmas tree) that we forget to notify a crucial participant: our special child. Although our intention is not to surprise our children, this is often what happens when we depart on an outing or embark on a project without explaining everything that will happen to our children in advance. Even for our non-verbal children, explaining ahead of time what will happen and why it will be fun for them will go a long way toward minimizing tantrums and maximizing cooperation. Leaving No Way Out
    It is very common to go to someone else's house for a holiday celebration. Usually, we just take our child and hope for the best, thinking that we don't have a lot of control over the matter. But we do! We can designate, in advance, a calm room or space where our child can go to decompress once they begin to be overwhelmed by all of the commotion and sensory input that comprise most celebrations. Every so often, it can really help to take our child to this room and spend some time alone with him or her. Focusing On Stopping Challenging Behaviors
    Most of us dread our children behaving in a challenging way. We worry about it, we look for it, and we try to stop it as soon as it happens. Ironically, this puts all the focus on what we DON'T want from our children. If we don't want our children to hit, for instance, focusing on "not hitting" can actually create more hitting. Instead, we can celebrate our children every time they do something we do want. If we have a child who sometimes hits, it can make a huge difference to actively look for any time our child is at all gentle - and then cheer wildly! Giving An Over-Stimulating Present
    Sure, we derive great joy from the experience of giving presents for our children. But when it comes to our special children, we want to be especially cognizant of what type of present we give. If we give a present with flashing lights and loud beeps, we're asking for challenging behavior later. Let's take some time to sincerely consider whether the gift we are about to give is going to contribute to the over-stimulation of our children with sensitive sensory systems. Leaving Our Children Out Of The Giving Process
    We always consider our special child when purchasing gifts. But do we think of our special child as a potential giver of gifts? Thinking of other people - what they want, what we could do for them - is an essential element of the socialization that we want our children to learn. The holidays provide the perfect opportunity for this! We can schedule sessions with our special child in advance where we help them create something for one or more of the people in his or her life. (These gifts and activities can range from very simple to more complex, depending on our particular child's level of development.) Then, on the day of gift-giving, we can invite our special child to present (as best he or she can) any gifts that he or she has made. Expecting Your Family To "Get It"
    Many of us may, at times, feel frustrated with members of our extended family for not being more understanding and responsive when it comes to our special child. But, remember, if our extended family members don't live with our child, they won't "get it." When taking our special children on visits to extended family for holiday visits, we can send e-mails to them explaining what they can do to make the visit comfortable for us and our child. We can take this opportunity to explain why sudden loud noises might be problematic, or tell everyone the answer our child likes to hear when he or she asks the same question over and over. This way, we stack the deck in our child's favor. Thinking That Activities Need To Happen Outside Your Home
    We know that children on the Autism Spectrum will always do better when they are not over-stimulated by the many sights, sounds, smells, and unpredictable events of the outside world. So, we can create experiences in our homes that we would normally go out for. For instance, instead of going to an evening parade with a festival of lights, we can put Christmas or Hanukkah lights around the house, turn off all the lights, and play holiday music at a gentle volume. Some of us might be concerned about depriving our children of fun holiday experiences, but keep in mind that when our children can't digest the experience, they're not having the fun experience we want for them, anyway. That's why, if we can create a digestible version of the outing at home, our children can really take in and enjoy the experience. Thus, we are actually giving our children more, not less. Seeing the Wrapping Instead of the Gift
    So often, we get caught up in the trappings of the holidays - the tree, the presents, the outings that have to go exactly as planned. It's okay to arrange fun things, but remember that these are only trimmings. They aren't the gift, they're just the wrapping. The gift is our special child. The gift is sharing sweetness with the people we love. Instead of using the holidays as a planning fest, we can use it to see the beauty in our child's uniqueness, to celebrate what our child can do, and to feel and encourage compassion for our child's very different way of experiencing the world.
    Mycket bra tankar!!
  • kaffemamma

    Tänk om vi kunde ha den här konferensen i Sverige....
    www.behandlaautism.nu gör sitt bästa, men tänk så mycket intressant det finns:

    NEW VOICES AT THE CONFERENCE - ARI LEADS THE WAY WITH TOP RESEARCHERS, PRACTITIONERS AND EDUCATORS JOIN US APRIL 26-29 IN NEWARK

    It's a critical time in autism research and 2012 promises to bring new findings and the potential for new evidence-based treatments at a rapid pace.  

    At this spring's conference we'll be featuring innovators from the scientific, behavioral, educational, nutritional and medical communities.  Along with many familiar faces, we are pleased to highlight these exciting new voices:
     

    Lindsey Biel, OTR/L
    Sensory Smart Strategies for Real-life Challenges
    Lindsey Biel is an occupational therapist with a private practice in NYC, where she evaluates and treats children and adolescents with autism spectrum disorders and other developmental challenges. She is coauthor of the award-winning Raising a Sensory Smart Child: The Definitive Handbook for Helping Your Child with Sensory Processing Issues, with a foreword by Temple Grandin. She is also coauthor of the Sensory Processing Master Class DVD program.
     

    Robyn Catagnus, EdD, BCBA-D
    Practical, Everyday Tips for Parents of Children with Autism
    Dr. Robyn Catagnus serves as Vice President, Professional Services of Rethink Autism.  As former owner of a special education agency, she supervised cases, developed training programs, and conducted workshops and training events. Her research interests include class-wide interventions, action research, online professional development, and e-collaboration for teams. Dr. Catagnus has a Doctor of Education in Special Education from Arcadia University, a Master of Science in Education in Curriculum, Instruction, & Technology in Education, Temple University, and is a Board Certified Behavior Analyst.
     
     

    Scott Faber, MD
    Environmental Toxins and Autism
    Dr. Scott Faber is a Developmental Pediatrician, board certified in Neurodevelopmental Disabilities, Developmental-Behavioral Pediatrics, and General Pediatrics. He is a clinician and researcher at the Neurodevelopmental Disabilities Service of The Children's Institute in Pittsburgh, Pa. He is a graduate of the University of Pittsburgh School of Medicine, completed pediatric residency at Boston Floating and North Shore Children's Hospitals, and finished his Developmental -Behavioral and Neurodevelopmental Disabilities fellowship at Rainbow Babies and Children's Hospital of Case Western Reserve University. His research and clinical interests center on the underlying detoxification and immunological features of autism, international adoption, and the use of nutritional support and biofeedback for children with neurodevelopmental disorders.
     
    Behavioral Support for the Treatment of Autism
    Ivy Feldman, Ph.D, BCBA-D (photo not available) has been educational director of the McCarton School since 2002. As such, Dr. Feldman is responsible for the curriculum, behavioral planning, and setting of the educational policies at the McCarton School. She also provides ongoing staff training and coordinating educational planning with parents and outside therapists. Dr. Feldman is licensed psychologist specializing in child psychology and a Board Certified Behavior Analyst. Dr. Feldman received her M.A. in psychology from New York University and a Ph.D. in clinical psychology from St. John's University, Queens, New York. She has worked as a special education teacher at League School in Brooklyn and provided Applied Behavioral Analysis (ABA) therapy, supervision, and consultation. In addition to her work with special-needs children, Dr. Feldman has done research with high-risk infants.
     
     

    Carmen N. Arroyo-Otero, MD, FAAP
    Hablemos de Autism
    Dr. Carmen N. Arroyo-Otero received her MD degree from the University of Puerto Rico School of Medicine and is board-certified in Pediatrics.

    She has been taking care of children with autism since 2004 in Austin, TX. She is the executive director/founder of Puzzles of Hope, Inc.; a non-profit organization that works to help children on the autism spectrum.

     

    Andrea M. Lee Roundfield, MS, MSEd, EdD (ABD)
    Building Partnerships with the Medical Community in IEP/Transition Planning for Individuals with Autism and Other Disabilities
    Andrea Lee Roundfield, MS, MA, LSCI &TCI certification, is a Special Education instructor and IEP and Related Services coordinator in New York City's District 75, the only school district of its kind. She has also taught in Mercy College's Graduate Teaching Fellows Program. Ms. Lee Roundfield has led inquiry studies and action research in teaching students with varying disabilities. She is pursuing her Doctor of Education in Education Leadership at Walden University.
     
     

    Maya Shetreat-Klein, MD
    Neurological Assessment and Seizure Management in Children with ASD,
    The Use of Botanical Agents in Treating ASD Symptoms &
    Comprehensive Case Management
    Dr. Shetreat-Klein is an integrative pediatric neurologist board-certified in neurology and pediatrics. She graduated from AECOM with a Special Distinction in Research for her work in autism. Following conventional neurology training, she completed University of Arizona's Program for Integrative Medicine and now teaches integrative neurology there as faculty.  An Assistant Clinical Professor of Neurology at Albert Einstein College of Medicine, Dr. Shetreat-Klein lectures widely on botanicals and children's nutritional and environmental health. She is director and founder of Brainmending, an integrative center in NYC for people who have complex neurological and chronic pediatric disorders.
     
    A Full Life with Autism: A Mother-Son Journey through Transition to Adulthood
     

    Chantal and Jeremy Sicile-Kira
    Chantal and Jeremy Sicile-Kira are autism advocates and co-authors of A Full Life with Autism: From Learning to Forming Relationships to Achieving Independence (Macmillan, 2012). Jeremy graduated from high school with a full academic diploma at age 22 despite being diagnosed as mentally retarded and severely autistic. He attends community college and writes for the school newspaper. Chantal is known for her practical advice on adolescence and transition, has written four other books, and founded AutismCollege.com for online information.
     
    Carbohydrates and the Microbiota in
     

    Brent Williams, PhD
    Children with Autism and Gastrointestinal Disturbances
    Dr. Brent Williams is a faculty member at the Center for Infection and Immunity at Columbia University. Dr. Williams received his PhD in Microbiology and Molecular Genetics from the University of California, Irvine. His recent research has focused on characterization of the molecular and microbial signatures associated with gastrointestinal disturbances in children with autism.  His research on GI disturbances in autism resulted in the publication of the PLoS One article entitled: "Impaired Carbohydrate Digestion and Transport and Mucosal Dysbiosis in the Intestines of Children with Autism and Gastrointestinal Disturbances," as well as the article in the ASM journal, mBio, entitled: "Sutterella Species in Intestinal Biopsies from Children with Autism and Gastrointestinal Disturbances: Application of Novel PCR-based Methods for Detection, Quantitation, and Phylogenetic Characterization of Sutterella Species."

Svar på tråden Autism - länktips, behandlingsmetoder osv 7