Autism - länktips, behandlingsmetoder osv 7
TRÅDSTARTARENS TILLÄGGSKOMMENTAR 2010-05-25 10:28
tråd för gf / cf recept:
www.familjeliv.se/Forum-5-72/m52572166.html
Jag har inte läst undersökningen om IBT som framkommit men jag måste säga att jag inte tycker det är vettigt att göra undersökningar på allt detta med IBT eftersom jag tycker det brister på så många håll i hur programmet ska utföras och om det verkligen utförs överhuvudtaget. I USA kör de ju först hemträning innan barnet ska ut ( så som finafamiljen försöker få till det med deras son, alltså att barnet ska slussas ut i en verksahet för att det hela ska lyckas) och så är ju programmet inte upplagt här i Sverige. De handledare vi haft är också själva ganska osäkra på hur tid ska räknas och vi har tex haft resurser som skrivit upp träningstid för att vår son lyssnat på musik. Jag tycker inte det är helt rätt att man gör undersökningar när det är så mycket som är luddigt eller inte funkar speciellt bra.
Jag har inte läst undersökningen om IBT som framkommit men jag måste säga att jag inte tycker det är vettigt att göra undersökningar på allt detta med IBT eftersom jag tycker det brister på så många håll i hur programmet ska utföras och om det verkligen utförs överhuvudtaget. I USA kör de ju först hemträning innan barnet ska ut ( så som finafamiljen försöker få till det med deras son, alltså att barnet ska slussas ut i en verksahet för att det hela ska lyckas) och så är ju programmet inte upplagt här i Sverige. De handledare vi haft är också själva ganska osäkra på hur tid ska räknas och vi har tex haft resurser som skrivit upp träningstid för att vår son lyssnat på musik. Jag tycker inte det är helt rätt att man gör undersökningar när det är så mycket som är luddigt eller inte funkar speciellt bra.
Jag håller på att läsa "Det räcker inte med kärlek" och skulle vilja på tips om liknande böcker.
Jag tycker att Birgitta Rubins bok "Barnet i glaskulan" där hon följt ett antal familjer som valt olika typer av behandlingar för sina barn är bra och nyttig. Dock är en del av historierna sorgliga, men då handlar det ofta om de som idag är äldre, som fått fel bemötande (som jag minns det, det var ett par år sedan jag läste den)
Iris Johansson bok "Annorlunda barndom" är ju också väldigt annorlunda, ett inifrån perspektiv från en person med autism, även om jag inte tror att hon är särskilt typisk ( på en del sätt, men på andra inte - förstås)
lite tankar inför jul från Son- Rise-folket:
Har lagt några nya intressanta artiklar / publiceringar om autism forskning kring mage / tarm / autism på www.behandlaautism.nu/forum
Funkar inte att kopiera just nu, så jag nöjer mig med en hänvisning
Tänk om vi kunde ha den här konferensen i Sverige....
www.behandlaautism.nu gör sitt bästa, men tänk så mycket intressant det finns:
NEW VOICES AT THE CONFERENCE - ARI LEADS THE WAY WITH TOP RESEARCHERS, PRACTITIONERS AND EDUCATORS JOIN US APRIL 26-29 IN NEWARK
It's a critical time in autism research and 2012 promises to bring new findings and the potential for new evidence-based treatments at a rapid pace.
At this spring's conference we'll be featuring innovators from the scientific, behavioral, educational, nutritional and medical communities. Along with many familiar faces, we are pleased to highlight these exciting new voices:
Lindsey Biel, OTR/L
Sensory Smart Strategies for Real-life Challenges
Lindsey Biel is an occupational therapist with a private practice in NYC, where she evaluates and treats children and adolescents with autism spectrum disorders and other developmental challenges. She is coauthor of the award-winning Raising a Sensory Smart Child: The Definitive Handbook for Helping Your Child with Sensory Processing Issues, with a foreword by Temple Grandin. She is also coauthor of the Sensory Processing Master Class DVD program.
Robyn Catagnus, EdD, BCBA-D
Practical, Everyday Tips for Parents of Children with Autism
Dr. Robyn Catagnus serves as Vice President, Professional Services of Rethink Autism. As former owner of a special education agency, she supervised cases, developed training programs, and conducted workshops and training events. Her research interests include class-wide interventions, action research, online professional development, and e-collaboration for teams. Dr. Catagnus has a Doctor of Education in Special Education from Arcadia University, a Master of Science in Education in Curriculum, Instruction, & Technology in Education, Temple University, and is a Board Certified Behavior Analyst.
Scott Faber, MD
Environmental Toxins and Autism
Dr. Scott Faber is a Developmental Pediatrician, board certified in Neurodevelopmental Disabilities, Developmental-Behavioral Pediatrics, and General Pediatrics. He is a clinician and researcher at the Neurodevelopmental Disabilities Service of The Children's Institute in Pittsburgh, Pa. He is a graduate of the University of Pittsburgh School of Medicine, completed pediatric residency at Boston Floating and North Shore Children's Hospitals, and finished his Developmental -Behavioral and Neurodevelopmental Disabilities fellowship at Rainbow Babies and Children's Hospital of Case Western Reserve University. His research and clinical interests center on the underlying detoxification and immunological features of autism, international adoption, and the use of nutritional support and biofeedback for children with neurodevelopmental disorders.
Behavioral Support for the Treatment of Autism
Ivy Feldman, Ph.D, BCBA-D (photo not available) has been educational director of the McCarton School since 2002. As such, Dr. Feldman is responsible for the curriculum, behavioral planning, and setting of the educational policies at the McCarton School. She also provides ongoing staff training and coordinating educational planning with parents and outside therapists. Dr. Feldman is licensed psychologist specializing in child psychology and a Board Certified Behavior Analyst. Dr. Feldman received her M.A. in psychology from New York University and a Ph.D. in clinical psychology from St. John's University, Queens, New York. She has worked as a special education teacher at League School in Brooklyn and provided Applied Behavioral Analysis (ABA) therapy, supervision, and consultation. In addition to her work with special-needs children, Dr. Feldman has done research with high-risk infants.
Carmen N. Arroyo-Otero, MD, FAAP
Hablemos de Autism
Dr. Carmen N. Arroyo-Otero received her MD degree from the University of Puerto Rico School of Medicine and is board-certified in Pediatrics.
She has been taking care of children with autism since 2004 in Austin, TX. She is the executive director/founder of Puzzles of Hope, Inc.; a non-profit organization that works to help children on the autism spectrum.
Andrea M. Lee Roundfield, MS, MSEd, EdD (ABD)
Building Partnerships with the Medical Community in IEP/Transition Planning for Individuals with Autism and Other Disabilities
Andrea Lee Roundfield, MS, MA, LSCI &TCI certification, is a Special Education instructor and IEP and Related Services coordinator in New York City's District 75, the only school district of its kind. She has also taught in Mercy College's Graduate Teaching Fellows Program. Ms. Lee Roundfield has led inquiry studies and action research in teaching students with varying disabilities. She is pursuing her Doctor of Education in Education Leadership at Walden University.
Maya Shetreat-Klein, MD
Neurological Assessment and Seizure Management in Children with ASD,
The Use of Botanical Agents in Treating ASD Symptoms &
Comprehensive Case Management
Dr. Shetreat-Klein is an integrative pediatric neurologist board-certified in neurology and pediatrics. She graduated from AECOM with a Special Distinction in Research for her work in autism. Following conventional neurology training, she completed University of Arizona's Program for Integrative Medicine and now teaches integrative neurology there as faculty. An Assistant Clinical Professor of Neurology at Albert Einstein College of Medicine, Dr. Shetreat-Klein lectures widely on botanicals and children's nutritional and environmental health. She is director and founder of Brainmending, an integrative center in NYC for people who have complex neurological and chronic pediatric disorders.
A Full Life with Autism: A Mother-Son Journey through Transition to Adulthood
Chantal and Jeremy Sicile-Kira
Chantal and Jeremy Sicile-Kira are autism advocates and co-authors of A Full Life with Autism: From Learning to Forming Relationships to Achieving Independence (Macmillan, 2012). Jeremy graduated from high school with a full academic diploma at age 22 despite being diagnosed as mentally retarded and severely autistic. He attends community college and writes for the school newspaper. Chantal is known for her practical advice on adolescence and transition, has written four other books, and founded AutismCollege.com for online information.
Carbohydrates and the Microbiota in
Brent Williams, PhD
Children with Autism and Gastrointestinal Disturbances
Dr. Brent Williams is a faculty member at the Center for Infection and Immunity at Columbia University. Dr. Williams received his PhD in Microbiology and Molecular Genetics from the University of California, Irvine. His recent research has focused on characterization of the molecular and microbial signatures associated with gastrointestinal disturbances in children with autism. His research on GI disturbances in autism resulted in the publication of the PLoS One article entitled: "Impaired Carbohydrate Digestion and Transport and Mucosal Dysbiosis in the Intestines of Children with Autism and Gastrointestinal Disturbances," as well as the article in the ASM journal, mBio, entitled: "Sutterella Species in Intestinal Biopsies from Children with Autism and Gastrointestinal Disturbances: Application of Novel PCR-based Methods for Detection, Quantitation, and Phylogenetic Characterization of Sutterella Species."
Lördagen den 11 februari välkomnar BAN! sina medlemmar till en träff där vi pratar om matlagning och bakning utan gluten, mjölk och soja. Läs mer på www.behandlaautism.nu